Saturday, June 24, 2006

You do the short gut Hokey Pokey and you turn yourself around....

Good news and bad news today (what else is news?)

First off, the results of the bloodwork came back today and cleared Eleanor of a central IV infection, which is good. Line infections are Scary with a capital S and you don't wnat to know the statistics on what happens if she gets one that gets a foothold. So she is off the heavy antibiotics and went back onto food onThursday night. 1 ml every hour. drip. drip. drip.

That progressed well through Friday and we even gave her some food by bottle which she thought was just great.

'You mean sometimes when I suck on the binkie, food comes out?'

Cool.

Friday afternnon, things were going so well that we increased her food to 2 ml/hour and she did just fine on this until mid evening when Gassy Girl decided to spit up a little of the milk that had gone in through her G-tube. I thought that it was no big deal. I assumed that I had missed a burping and she showed me that she was still Gassy Girl, the child of Gassy Guy and Evervescent Abby. Bubble bubble, squawk, wheeeeze, wheeeeze. Then a quiet that makes me really nervous as she clears the liquid from her throat. Then a really loud set of wheezes.

IT is still scary even though I can predict the sound effects.

It is now 4 AM and. after a quick wardrobe change, Ellie is back to sleep and back to the land of no food. At 3:30 she decided to barf for distance with a little bit of milk and a whole lot of gas which made a dramatic entrance all over her fancy PJ's that she is finally long enough to wear.


I can still go upright from a deep sleep in two seconds.

So we are in a holding pattern until morning when the doctors, and more importantly Abby, arrive to assess the situation.

I am still not upset or discouraged. Amazingly I was having a dream about meeting a discouraged parent when Ellie woke me up tonight.

Doctor Freud. Paging Doctor Freud.......

Strange.

No comments: