tag:blogger.com,1999:blog-25914405.post8682204151053900434..comments2023-10-22T11:52:37.326-04:00Comments on The Short Gut News: Gib and Abby Broganhttp://www.blogger.com/profile/06179363281707963164noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-25914405.post-24066116400242814642007-10-07T08:10:00.000-04:002007-10-07T08:10:00.000-04:00ILEX Paste works really well, just make sure to pu...ILEX Paste works really well, just make sure to put vaseline on afterwards or it will make the diaper stick to the buttom. No prescription necessary. It's a little pricey, best to by online in bulk. But after taking care of a lot of short-gut kids, we've had the best luck with it.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-80835261185105594352007-05-22T18:37:00.000-04:002007-05-22T18:37:00.000-04:00Hi Guys,Naomi had the worst nappy rash the hospita...Hi Guys,<BR/>Naomi had the worst nappy rash the hospital had ever seen but one of the nurses from St. Lucia suggested gauze soaked in olive oil (extra virgin!!) for cleaning and the doc presribed a 50/50 mix of Nystatin and Metanium and I have to say they both definitely worked and she rarely had any red bum after we used them<BR/>cheers, TunnyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-46224967846577687522007-05-19T20:23:00.000-04:002007-05-19T20:23:00.000-04:00Hi! Its Eithene's mom :) I just read what you post...Hi! Its Eithene's mom :) I just read what you posted about Ellie's colostomy fiascos, and I'm glad to hear we aren't alone! ;) We actually just began talking with Sandy Quigley this week- and I got her samples of bigger colostomy bags yesterday!(she said Eithene has outgrown hers as well, and that's why they come off all the time) You are right- she is the best!!!! Eithene also gets terrible yeast infections on her stomach- around her ostomies (she has an end colostomy with 2 stomas) all the way up around her g-tube, and we are hoping Sandy can break the vicious cycle.<BR/> Good luck with the walk- my dad ran the B marathon for Children's last month- we raised $2500- it was great, even though Eithene got sick with a respiratory infection from the weather (we think?) and ended up spending a week at our favorite hotel, lol!<BR/>We are hoping to get down to Mystic Aquarium sometime this summer (its closer to us than Boston's) and I'll be thinking of you Abbey! I just love to read Ellie's blog- she is simply the cutest thing ever- and Eithene just loves to watch her movies!!! <BR/>Jessica Hilliard :)<BR/>www.caringbridge.org/visit/eithenerosehilliardAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-43712591099437471562007-05-18T11:07:00.000-04:002007-05-18T11:07:00.000-04:00Hi -- you don't know me but I stumbled across your...Hi -- you don't know me but I stumbled across your blog and I have to say that your daughter is beautiful and the love you have for her is so clear in this blog. Thanks for sharing a little bit of your family's joys and sorrows, and may Ellie grow up strong and smart.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-30268333250270584822007-05-16T22:56:00.000-04:002007-05-16T22:56:00.000-04:00I used to sit at the top of the stairs and wait fo...I used to sit at the top of the stairs and wait for you kids to go to sleep. I am delighted that" what goes around, comes around" and you get to wait for raspberry blowing Ellie to go to sleep!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-1142987186263138712007-05-16T22:35:00.000-04:002007-05-16T22:35:00.000-04:00She's beautiful! For the bum, have you ever tried ...She's beautiful! <BR/>For the bum, have you ever tried Cholestyramine in Aquafor 10% ointment? It's a perscription and it really works for us. <BR/>Just a suggestion.mini and brotherhttps://www.blogger.com/profile/14944602803772449353noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-78676375113500101402007-05-16T21:57:00.000-04:002007-05-16T21:57:00.000-04:00Now listen. This child sounds like a steam engine....Now listen. This child sounds like a steam engine. I can only guess that her grandmother taught her that sound. When you combine the sound with the great dance routine, we're talking talent.<BR/><BR/>Tell her that Jack said, "Ellie, we got some dancin' ta do."<BR/><BR/>She's beautiful.jackbroganhttps://www.blogger.com/profile/00524209307709461053noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-73948591920640080042007-05-16T21:45:00.000-04:002007-05-16T21:45:00.000-04:00Oh, Gibby, it's so right that you have a child who...Oh, Gibby, it's so right that you have a child who gets such joy out of that particular noise.katehttps://www.blogger.com/profile/08251072731122650144noreply@blogger.com