tag:blogger.com,1999:blog-25914405.post8804550269825520375..comments2023-10-22T11:52:37.326-04:00Comments on The Short Gut News: Our version of Penicillin?Gib and Abby Broganhttp://www.blogger.com/profile/06179363281707963164noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-25914405.post-70891576418475207922008-09-13T20:06:00.000-04:002008-09-13T20:06:00.000-04:00Yay Ellie! How fantastic! We're still waiting on...Yay Ellie! How fantastic! We're still waiting on J to get motivated to take formula or food by mouth. She still only does water.<BR/><BR/>The freedom for all of you has to be wonderful! <BR/><BR/>Was this the first time that Ellie really ate sweets?? I ask b/c J HATES anything sweet and immediately spits it out. We wonder if the sugar content of her formula is part of why she doesn't want to take it by mouth.<BR/><BR/>Hope that things continue to go so well for you! Thanks for sharing.PsychMammahttps://www.blogger.com/profile/18072554462874623041noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-91239736144703047652008-09-03T23:04:00.000-04:002008-09-03T23:04:00.000-04:00What great progress!! Peter likes his Elecare by ...What great progress!! Peter likes his Elecare by mouth too - only if it is cold though. I am glad for all of you on how well things are going!<BR/><BR/>Kathryn MichalskiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-44298129800398674642008-09-02T20:24:00.000-04:002008-09-02T20:24:00.000-04:00Go Ellie! Isn't amazing how equipment failure end...Go Ellie! Isn't amazing how equipment failure ends up being a blessing!Sharron Aprilhttps://www.blogger.com/profile/14507092351066976603noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-80483003184299790332008-09-02T12:43:00.000-04:002008-09-02T12:43:00.000-04:00Excellent discovery! Here's to good news! I especi...Excellent discovery! Here's to good news! I especially loved this: "We know that this may be a passing thing and it could all go away tomorrow but for now this progress is great." Good advice for anybody. Hooray!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-75773935019705810302008-09-01T17:44:00.000-04:002008-09-01T17:44:00.000-04:00Awesome news! Wish she could teach a class on how ...Awesome news! Wish she could teach a class on how to drink Elecare!!mini and brotherhttps://www.blogger.com/profile/14944602803772449353noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-90591018461239737702008-09-01T14:32:00.000-04:002008-09-01T14:32:00.000-04:00So totally AWESOME!Would you mind sharing what sor...So totally AWESOME!<BR/>Would you mind sharing what sorts of solid foods Ellie eats(maybe a typical run down for one day)? You mentioned solid foods do good things for her poops...would you elaborate? The idea of being on only tubes at night is like a dream...granted we do bolus feeds so Mari doesnt have that back pack, she is on TPN 18hours per day we give her her free time from 9am-3pm so thats nice for her. Im hoping at our next clinic appointment(wednesday) that we can decrease TPN to 16hours, I get literal butterflies at the idea! We are at 16ounce per day of a 22cal formula(we are on a break from solid foods)---this from a girl who used to only tollerate no more than 5mls per hour. Arent these girls just amazing?! :)MommyNayhttps://www.blogger.com/profile/10959938025230597364noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-604445592776157242008-09-01T09:18:00.000-04:002008-09-01T09:18:00.000-04:00Wow- I don't know what else to say! That's great! ...Wow- I don't know what else to say! That's great! Go Ellie! No backpack- she must be pretty excited! :) I hope it lasts for awhile! CAN't believe she drinks the Elecare though- yuuuuuck! Oh well, a good thing is a good thing, right? :)<BR/><BR/>Jessica :)<BR/><BR/>www.caringbridge.org/visit/eithenerosehilliardAnonymousnoreply@blogger.com