tag:blogger.com,1999:blog-25914405.post1688756554877086687..comments2023-10-22T11:52:37.326-04:00Comments on The Short Gut News: OleyGib and Abby Broganhttp://www.blogger.com/profile/06179363281707963164noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-25914405.post-44100356746403382222010-04-21T04:11:32.900-04:002010-04-21T04:11:32.900-04:00I just lurked in but wanted to share that our now-...I just lurked in but wanted to share that our now-5yr old is a short gut. He lost about 50% of his small intestines and ileoceccal (sp?) valve at 1 month old due to a bowel obstruction. It was a long road of TPN, g-tube, the whole nine yards, but happy to report that he is now tube free and just like any other boy his age. :) He will probably always have loose stools, but hey, he made it. Just to see Ellie and her central line, gtube, etc and all those medical terms and supplies I remember so well reminds me of what a blessing we have. It is great to see stories of other kids who have experienced this... back in 2004, there was very little info. She's a beautiful little girl!<br /><br />Here's a pic to our boy - you can't see all his scars, but they're there to remind us of his long battle and recovery!<br /><br />http://www.facebook.com/#!/photo.php?pid=4251693&id=541831460Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-36016500362924863492007-07-02T09:18:00.000-04:002007-07-02T09:18:00.000-04:00Thank you so much for all the information you cont...Thank you so much for all the information you continually provide about short gut kids. Nora Thomas is my grandniece and your blog helps us understand both what's happening in this area of medicine and what we can expect for Nora. Since we found your site and saw the difference Omegaven makes, our family has great hope for her future. I read the blogs of the other short gut kids on Nora's site regularly and keep the Jacksonville branch of Nora's family posted on the progress of them all. Ellie is a household name here! She is adorable, and I enjoy the glimpses you provide of her discovering the world. And, yes, the feet picture is great!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-2811899675511686142007-07-01T18:52:00.000-04:002007-07-01T18:52:00.000-04:00Hi there,We have never met but I follow your story...Hi there,<BR/><BR/>We have never met but I follow your story and found you through the short gut wiki page. First of all let me say, Ellie is gorgeous, her smile and love of life is contagious. I loved that one video where she walks right past you and into the other room, squealing with delight. Second, your desire to learn more, to find effective treatments and solutions to the challenges you face with Ellie's medical condition is inspriational, to say the least. You guys are doing such a great job and are such wonderful advocates for omegaven. Keep up the great work. You done good!<BR/><BR/>PS love the "feet" photo too!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-37432871098065682772007-07-01T17:17:00.000-04:002007-07-01T17:17:00.000-04:00I love the feet picture you added at the top of yo...I love the feet picture you added at the top of your blog! Such a sweet picture. Ellie is looking so big! It's amazing how fast our babies grow up.Astraeahttps://www.blogger.com/profile/10925319354488270854noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-18410660079858039912007-07-01T15:03:00.000-04:002007-07-01T15:03:00.000-04:00Sounds like a great conference. I love seeing pict...Sounds like a great conference. I love seeing pictures of healthy short gut kids and those wonderful doctors. We love probotics, it's the only thing we have found to keep Cdiff away. Ellie looks beautiful like always.mini and brotherhttps://www.blogger.com/profile/14944602803772449353noreply@blogger.com