tag:blogger.com,1999:blog-25914405.post2014092710803721954..comments2023-10-22T11:52:37.326-04:00Comments on The Short Gut News: Ellie's First PostGib and Abby Broganhttp://www.blogger.com/profile/06179363281707963164noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-25914405.post-70623043241956156762016-12-30T10:17:40.903-05:002016-12-30T10:17:40.903-05:00Ellie, you are exceptional! Thank you for writing!...Ellie, you are exceptional! Thank you for writing!<br /><br />We just took our baby (with her broviac and ileostomy) home from the hospital at 6 1/2 months. I wish we would've taped it like your parents. I think I tried moon walking, too!! <br /><br />Love from Pittsburgh!<br /><br /> Unknownhttps://www.blogger.com/profile/00291712247196001701noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-22131133175038474572016-12-13T08:25:03.229-05:002016-12-13T08:25:03.229-05:00Hi Ellie, my name is Alex and I am 12 years old. ...Hi Ellie, my name is Alex and I am 12 years old. My mom has been reading your parents blog ever since you were little. I also have short gut syndrome. I have had it all my life. I have a Hickman CVL which is exactly like a broviac just a little bigger. I am on TPN 7 nights a week and on lipids 1 night a week. I also have a g-tube for feeds at night. I have made progress in lowering my TPN. I hope your test went well and happy holidays!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-30450773887945560952016-12-12T21:13:42.421-05:002016-12-12T21:13:42.421-05:00Hi Ellie. This is the Batesole family. We have 4 b...Hi Ellie. This is the Batesole family. We have 4 boys. 10 ( 5th grade like you) 8, 6 and 3. Bryer our 3 yr old has short gut and a broviac like you. Thanks for sharing. ❤️Tashahttps://www.blogger.com/profile/10323461030763064305noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-64589246272806835122016-12-12T11:32:27.171-05:002016-12-12T11:32:27.171-05:00Hi Ellie - so nice to hear from you! I started rea...Hi Ellie - so nice to hear from you! I started reading this blog in 2008 when my son was in hospital with SBS. It gave me a lot of hope to see that you were jumping over your hurdles like a champ! I can't wait to read more. My son will be 9 in January - he was on TPN for 18 months and was g-tube fed until late last year. He was a 29 weeks prem and he lost 50% of his small intestine and his ICV due to NEC.<br /><br />Warmly,<br /><br />Susan in CanadaAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-63110515097431012502016-12-12T11:04:25.069-05:002016-12-12T11:04:25.069-05:00Hi Ellie, my name is Jill - I know your mom and da...Hi Ellie, my name is Jill - I know your mom and dad from when we all lived in the FL keys driving boats, snorkeling and having fun. I think it is the coolest that you are contributing to your blog. I look forward to sharing it with my kids, Lila (age 9) and Colby (age 7) - kind of similar to you and Will. I think you're pretty awesome - keep it up!Jillhttps://www.blogger.com/profile/08030054892555149944noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-5821240092554115652016-12-12T09:55:18.260-05:002016-12-12T09:55:18.260-05:00Hi Ellie! I'm so glad to hear from you on this...Hi Ellie! I'm so glad to hear from you on this blog. You met me a long time ago, when you were 4, but you probably don't remember that. I don't have short gut, but my daughter, Blaise, does. She's in 2nd grade now and she doesn't need TPN or a g-tube any more, but she does have to eat a ton to keep growing. I hope fifth grade is going really well and that your family has a fantastic holiday! (PS Your parents are strange, but just think how boring life with normal parents would be!) Erinhttps://www.blogger.com/profile/08106624829472521023noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-14637553449770069942016-12-11T21:55:44.603-05:002016-12-11T21:55:44.603-05:00Hi Elle,
I think it is so wonderful that you are ...Hi Elle, <br />I think it is so wonderful that you are starting a blog! I went to Elementary school with your mom and we became great friends! When I was in eighth grade I had two surgeries removing 2 feet 6 inches of my small intestine. I wished I had someone to reach out to that went through a similar experience. You are so brave!Anonymoushttps://www.blogger.com/profile/02528721560443583585noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-55354238048513698722016-12-11T19:28:22.636-05:002016-12-11T19:28:22.636-05:00I am proud to have a Facebook blog friend who is a...I am proud to have a Facebook blog friend who is as brave and beautiful as you are. MIDDavehttps://www.blogger.com/profile/08455244662795405496noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-2628171029011942742016-12-11T18:16:17.437-05:002016-12-11T18:16:17.437-05:00Hi Elle, what a great idea to start posting. My so...Hi Elle, what a great idea to start posting. My son Timmy is 3 years old and also has extreme SBS. We live in Poland (Europe). I hope that some day he will start to blog with me. It is great to hear that clinic is not scary :)Izabelahttps://www.blogger.com/profile/08787303574501464712noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-85184783673876336152016-12-11T16:48:54.065-05:002016-12-11T16:48:54.065-05:00This is Awsome!! (You really are a good writer) We...This is Awsome!! (You really are a good writer) We all love you from MaineKatehttps://www.blogger.com/profile/05903685284561930946noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-87152523071156997352016-12-11T16:07:09.061-05:002016-12-11T16:07:09.061-05:00Ellie!!! Great first blog post. I can't wait f...Ellie!!! Great first blog post. I can't wait for more. That moonwalk made a lot of people very happy! <3 <3Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-25914405.post-20297404439953222332016-12-11T12:38:35.857-05:002016-12-11T12:38:35.857-05:00Hi Ellie! This is going to be fun for all us blog ...Hi Ellie! This is going to be fun for all us blog followers - thank you for taking it up again from your parents! What is a DEXA scan? Keephttps://www.blogger.com/profile/11876092869897477523noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-2986624796600440522016-12-11T12:38:32.772-05:002016-12-11T12:38:32.772-05:00Hi Ellie, thank you for sharing your story so far ...Hi Ellie, thank you for sharing your story so far and look forward to hearing more! I work with your mom at ThriveRx and an adult on TPN. When I first got sick I started blogging too and really enjoyed it. It's surprising how much your story and thoughts can inspire people all over the world so keep it up! Stephaniehttps://www.blogger.com/profile/10376604610344801300noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-87771147754173561272016-12-11T12:24:43.572-05:002016-12-11T12:24:43.572-05:00Awesome, Ellie!! Keep it up!
Awesome, Ellie!! Keep it up!<br />Barbara Meaganhttps://www.blogger.com/profile/13547984091805997380noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-38445149729047206622016-12-11T12:04:55.068-05:002016-12-11T12:04:55.068-05:00Spelling champ!! Great start EllieSpelling champ!! Great start EllieJennifer Leichterhttps://www.blogger.com/profile/02151119327061607824noreply@blogger.comtag:blogger.com,1999:blog-25914405.post-66190587845146952782016-12-11T11:27:46.070-05:002016-12-11T11:27:46.070-05:00This is so cool! Great to hear from her. This is so cool! Great to hear from her. k8landhttps://www.blogger.com/profile/14086598172509605694noreply@blogger.com