Some highlights of the last month:
Potty Training- Ellie has decided that the toilet is a great thing all of a sudden. She rarely poops in a diaper anymore and is working on the pee when she isn’t overwhelmed by the IV infusion overnight. Unfortunately for us, that means one of us (most often Abby because Ellie likes to poop with Mom) is up for the day most days around 5AM. But on the upside her bum is very happy to be clean and even the most acidic short gut poops aren’t too bad for her. Now if we could get her to move to the toilet for peeing we would be in a really good situation
Fetch at the beach
Halloween- This year Ellie was a lady bug for Halloween. She really wanted to look like a "Real" lady bug so we broke out the sewing machine and turned her into a lady bug.
Pneumonia- For the last month we have been dealing with a nasty cold that has made the rounds among all of us. Ellie got the worst of this and last week ended up with what we like to call ‘running pneumonia’ last week. Running because even with lungs that ‘crackle’ she never slowed down, not once. Through the whole thing she lost a pound, one of those great pounds that we were so proud of her gaining after last summer.
We also learned that even bronchitis/pneumonia is a serious risk for kids with a central line because of the possibility of the bugs migrating into her central line. It is such a risk that we spent a night last week in the ER getting line cultures drawn and starting a cocktail of IV antibiotics. In by 7PM out by 3:45AM. Have I told you how much I love the portable DVD player? All cultures were negative and she back to her old self.
Pre-School- Ellie absolutely loves schools and the three mornings a week that she and her nurse Karlene go to pre-school are the highlight of her week. Even though she felt fine, her progressing pneumonia kept her out of school for a week and a half this month. We just couldn’t ask parents to keep their sick kids home to protect Ellie and then send her to school with an awful cough. Today she went back and never missed a step.
Over all she is doing great and very excited for the holidays. We are heading up to Maine for the first time since the middle of this summer. We promise to update more often!