Monday, March 29, 2010

Drumroll, Please.

Ellie has some breaking news that she would like to share:


video

Monday, March 22, 2010

Swimming





This winter Ellie started swimming lessons at our local YMCA.

How, you might ask, is the same girl that didn't take baths is now swimming at the Y?

The answer lies somewhere in the land of technology, calculated risk and a healthy dose of normalcy.

The technological side came with our fine-tuning of a way to keep Ellie's central line cap and dressing dry even in a pool. We started experimenting last summer in Abby's sister's pool and had some miserable failures but since we have gotten much better and have a waterproof system that works very well.

It starts with a piece of Press n' Seal from the supermarket. We wrap that around her cap and press it to seal it. Water against the cap is the big risk for infections and s it does sealing food in your fridge.

Once the cap is sealed, we take a piece of tegaderm, a very sticky, waterproof film that comes from the medical supply company and cover her whole line, dressing and cap under a canopy of plastic.

Voila, we are waterproof!


We think that the biggest thing is that now Ellie's chest is finally big enough to fit a sheet of tegaderm onto her chest without any folds. Folds are bad and let water in. That isn't to say that the solution is fool-proof and we are quick to come home and change her dressing and cap before her next IV infusion but it reduces the risk and lets us get her doing things that other almost-four-year-old kids do.

It was time get her wet and this does the trick nicely even if Abby and I both keep personal 72 hour clocks after she gets wet to watch for central line infections.

We can now focus on getting her to let go of the pool wall by summer.