The Short Gut News

This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.

Friday, March 23, 2018

Just trying to be a kid.

Ellie was just featured in the Boston Children's Hosptial Thriving blog.  She is just a kid trying to be a kid.

https://thriving.childrenshospital.org/short-bowel-syndrome-care-ellie/ 


Posted by Abby Brogan at 9:34 AM 3 comments:
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  • Abby Brogan
  • Gib and Abby Brogan

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    Some topics covered in this blog

    • bathing shortbowel
    • Biopsy
    • Children's books
    • Day 1 how it began
    • Dealing with hospital life
    • education
    • foods
    • Line Cover
    • map of Ellie's bowel
    • omegaven
    • short bowel
    • Short bowel diet
    • Short Bowel Syndrome
    • short gut
    • Summary of Ellie's story
    • Summer Camp
    • swimming
    • TPN
    • TPN Associated Liver Disease
    • Transplant

    Short Gut/Bowel Information

    • Short Gut Syndrome families' support group
    • Billirubin
    • Short bowel websit- has great info!
    • Omegaven
    • TPN-Associtated Liver Disease
    • Short Bowel syndrome

    Our Doctors and Hospital

    • Dr. Mark Puder, Head of Omegaven program and Pediatric Surgeon
    • Boston Center for Advanced Intestinal Rehabilitation

    Reading Material

    • January 2009 Boston Globe Omegaven Article featuring Ellie
    • Children's Hospital Omegaven story
    • Sick Kids( Toronto) Short Bowel Program
    • Wall Street Journal Omegaven Story
    • Pediatric Omegaven Article
    • Newsday (NY) Omegaven Story
    • Boston Globe Omegaven Story

    Other short gut blogs

    • Addy
    • Aidyn
    • Alex
    • Austin
    • Blaise
    • Bo
    • Caed
    • Caleigh
    • Carter
    • Chase
    • Collin
    • Connor
    • Faith
    • Gabrielle
    • Gen
    • Isabella
    • Jenna
    • Joel
    • Josh
    • Joshua
    • Kyra
    • Max
    • Naomi
    • Nora
    • Patrick
    • Peter
    • Rafi
    • Sam
    • Samuel
    • Sébastien
    • Zachary
    • Zak

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