There are tons of resources out there for kids with central lines, Short bowel or on TPN. (Adults have used them to explain their central lines to younger family members too) I have helped my home infusion company produce many educational resources but my favorite thing they have produced is their children's books and the Strap Wrap. If you are interested in any of these books or the strap wrap just email Abby at abrogan@thriverx.net
My Special Line: This early
reader or read-to-me book addresses the importance of good line care in a simplified
manner with rhyme and repetition. The book’s
message is that a central venous line is special and needs to be kept safe,
clean and dry.
Let's Learn About Central Lines: This new book
for elementary aged children discusses central lines, basic central line care
and how children can begin to take an active role in caring for their central venous
line (CVL).
Including:
•
What is a
CVL
•
Who might
need a CVL
• How they can help keep their CVL clean and dry
HENRY IMAGINES, An
Adventurous View of Short Bowel Syndrome:
This is book was written by a father about his son with Short BowelSyndrome (SBS) - a condition many children and adults are living with all over
the world.
By using his
imagination, Henry takes the trickier parts of everyday life with an ostomy,
G-tube and central line and turns them into an adventure! If your child or a
young person in your family, school or neighborhood has this condition or has
an ostomy, central line or G-tube this book is a great way to help them learn
and have fun. T
Strap Wrap: A medical free alert device for children or adults on IV nutrition support.
The strap can wrap around a seat belt strap, purse strap, diaper bag or backpack strap. The straps contains medical a short medical history, medications, allergies, Dr. contact information and emergency contact information. It was created a grandmother of a consumer of BioRx the parent company to ThriveRx.
Watch this video to see the Strap Wrap in the news: http://www.clipsyndicate.com/video/play/746694
If you are interested in any of these books or the strap wrap just email Abby at abrogan@thriverx.net.
