Since Ellie left the hospital she has been on a whole string of medications to help her gut do more of what it is supposed to do.
These are not your average drugs and can’t come from the CVS or Walgreens down the street. Instead, the have to be ‘compounded’ by a special kind of compounding pharmacy. This is usually the older independent pharmacies that you may not even notice in your town.
A couple around here still call themselves apothecaries, a term that I thought went away with Romeo and Juliet, phrenology, and leeches.
Apparently I was wrong.
When we left Children’s in December we got Ellie prescriptions filled at the apothecary that the hospital knew that is close by the hospital. It is a tiny place in the basement of a building with beakers and vats of stuff cooking. It is a bit of a pain to get to, but it had the drugs that Ellie needed and made them quickly for us so we got her meds there to start. It also has all sorts of people getting their custom meds which is a good sign.
With two return visits to Children’s, that original 30 day supply managed to last us almost 2 months.
This past weekend the Reglan ran low and to save a trip to
Sure , they had it and could fill it for us. Great. We don’t have to go to
Some meds, some dinner and I’ll be home.
A great plan which worked just fine until Abby tried to give Ellie her evening Reglan-Ellie wanted no parts of it and spit half of it out before barfing the rest onto her bib.
Something wasn’t right with the smell of the liquid and the taste was off as well. It tasted like Chocolate/Vanilla instead of baby fruit. We stopped right there and waited for morning.
Reglan is a nice drug but we stop and start it when things seem odd.
We called the pharmacist at Children’s the next morning and found out that all Reglan isn’t the same. Most likely what she got was the adult version that had the same dosage but also had a lot of alcohol and sugar in it- two things that are no-nos for short gut kids and can cause all sorts of other issues.
On to pharmacy number two, in
But then the fireworks started.
Instead of pooping 2-3 times a day, Ellie has pooped six times for the past two days and was just grumpy in the night.
Strike Two. Pooping six times in a day brings a certain Johnny Cash song to mind…..
Poor little girl.
We’re not sure if the new version of Reglan is the culprit but we stopped it yesterday and her poops are back in order.
Her poor sore bum seems to better, too. We have really good hospital diaper rash cream, powder and ointment which takes care of the rash very quickly. How we will ever go back to plain ol' desitin is a mystery.
Abby is off to Boston today to get the good stuff directly from the pharmacist Children’s to tide us over until the next prescription is due.
We’ll be driving to
Love is a burning thing
and it makes a fiery ring….