In the morning we will OFFICIALLY DO NOTHING COOL.
In the afternoon we will be going to a memorial service for Carol, one of the great nurses at Children’s who passed away this winter after fighting cancer. Carol’s first day back to work after chemo was our first day at Children’s. She was a great friend and helped us as we went through some really bad stuff making decisions about Ellie’s care. She truly loved Ellie and was an outspoken advocate for her. After her cancer came back last fall and she was not working she would make a point of visiting Ellie when she came to the hospital around her visits to Dana-Farber. Unfortunately, we could not go to her funeral earlier this winter because Ellie was back in the hospital after her prolapsed ostomy.
She loved the tiny bits of progress that Ellie made and would really get a kick out of the smiling happy girl that is at home right now ( Video Link1) learning to walk (Video link2) and the little girl in the pink dress that will be giggling at her memorial service.
We miss her.