This is where we started. This is day zero before her first-ever surgery, notice no g-tube....
This is where we ended up:
One year ago, before the golf began, I got ready to cook pancakes and Jimmy Dean sausages. It is funny how the details stick around but I guess that the Breakfast of Champions and Pregnant Ladies has a way of staying in your mind.
I had just started cooking while Abby called the Obstetrician to see whether her symptoms-which included the words fluid and leaking and other words that make guys cringe- were a sign of labor.
Abby came in a few minutes later and told me to drop what I was doing and get ready to go to the hospital. The breakfast, incidentally, finally got cooked a few weeks later at the Ronald McDonald House in
I ended up watching the Saturday third round from the hospital chair/bed in
Little did I know how many days and nights I would spend in a chair exactly like that one in the coming year.
Abby has much different memories of this part of the adventure and tells me that hearing the announcers on TV makes her want to barf. Since I have never felt contractions or had my cervix examined, I can only imagine what she was feeling as I watched the calm green golf on TV.
A long 24 hours later, I watched the Sunday fourth round in the hellish waiting room of the Yale NICU surrounded by dozens of people (link) while I waited for the surgeon to give us news and for Abby’s ambulance to get her to
One very long year after that and I am home watching Tiger Woods do his thing from the friendly ass divot in my favorite rotten chair.
It is odd but it is the golf that really started me thinking about the entire last year. I knew that it would be coming but the golf was the trigger. With a milestone like a first birthday coming up I guess we will be thinking about the last year a lot in the coming days and remembering some of the really dark days that we had in the beginning.
Fortunately we have days like today to contrast against the crappy days.
One trip to Stride Rite today to buy real babygirl shoes:
Likewise, a weekend like we finally had last weekend makes up for the long string of days that I couldn’t physically talk to any of my siblings to explain what was going on and a period where my sister Kate and I avoided each other entirely for about a week because we both knew that we would be blubbering messes. Sitting on Kate's floor with Ellie a week ago made up for lots....
And even though reading a draft of this post made Abby and I cry, writing blog posts like this one makes up for the first one (link) that I couldn’t read to Abby aloud without sobbing in the hospital room at Yale.
As we learn of other short bowel families using this blog as a source to know a little bit about what to expect, I hope that it gives them a glimpse of the fantastic parts that go along with the crappy parts.
If we had known then that Ellie would be upstairs babbling in her sleep right now and the great progress that our little girl has made, those dark times wouldn’t have been nearly as tough.