I don't think that they will be wearing their pink metallic boots or have their enteral tube wrapped around their arm. (but Manny will be Manny)
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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2008
(87)
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January
(18)
- 15 Days...
- Multitasking with a $1400 piece of equipment
- Back so soon?
- Soft and Pink Round 2
- First few days home
- HOME!!
- Plans for Home
- I think I'll go for a walk...
- Poop, lots of it.
- Monday Update
- A Long Night but a good day
- Surgical Update Part 2
- Soft and pink
- 12:30 Update
- With a smile and a giggle she is in
- and we haven't even gotten to the hospital yet....
- I'm a big girl-3T thank you very much!
- We have a date!
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January
(18)
4 comments:
...and suddenly, it's beginning to feel like Spring. I'm glad to see you haven't fallen for the girly pink Red Sox hat.
Oh I think the pink metallic boots are just what our boys of summer need!!!!
Ellie's cousin Audrey spent a good part of today in metallic pink cowboy boots, a Red Sox T-shirt and blonde curls. I can't wait until the day taht the two of them keep their fathers up at night while they raise hell.
Thanks for visiting my blog! Ive read through much of yours, I still have so much to learn. Ellie is such a beautiful little girl! :o)
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