She is doing well today and actually had been in very good spirits through this whole thing. When we talked to her GI doctor on Friday, we had to keep explaining that she is sick, just not acting sick. Sometimes I wonder if this is side effect of the Omegaven? One thing that did come out of all this past week is that her admission for a endoscope study of her and motility study of her colon, that was scheduled for Monday, had been canceled. The GI doctor overseeing the study said that because her bowels took such a hit over the past week, the results we would get next week would be false. So we are staying home and have to wait another few months for a new study date.
So for now we are watching our girl, tracking numbers and keeping the "go bags" packed.
On a side note:
Two pieces of great news!
- Carter Cates, see his blog He is a little boy from Texas that came to Boston for Omegaven. Omegaven did help his over all health and did improve his bilirubin, but his liver was too damaged. On Monday he got the gift of life in the form of a new liver, stomach, small bowel, pancreas and spleen. He and his family are doing well.
- Tyler Paul April was born yesterday! See his blog He is the new son of our cousins in NH. He was born at 28 weeks. He is beautiful and big for his age. His mother's water broke at 24 weeks and she managed to hold out till 28 weeks. It was a very long 4 weeks, but very worth it. Tyler was transfered to Dartmouth hospital and doing well. His mother is still back at the original hospital recovering from the birth. It is very typical when a baby is transfered the mother is not, our thoughts are with her as it can not be easy to so far from her baby.