Yup. Our first fever in 2 and a half years. But I think it is due to a bad cough Ellie has had on an off for a while now, not her line. Ellie and I did spend the morning and most of the afternoon at Children's with Dr. Jennings. He had us come to his office rather than the ER, which was very nice.
We drew Blood for Cultures (just to be on the safe side) and for CBC. Everything looked good on what we got back today. We will have to wait a few days for the cultures. But the best news is that we are home. We drew blood from her line (for the first time in a almost a year), took a walk, had lunch, ran into another Omegaven family in town for clinic, got a call from Dr. Jennings and came home. Ellie had a great time, I am ready to fall asleep here in front of the computer.
So now I have to take care of the other half of Ellie, the normal kid half. I just treat her like any other sick kid and call Dr. Jennings if anything changes for the worse.
I'm not surprised that this happened. If you remember last year when Gib was away on this same trip, I OD'ed Ellie on Omegaven = 7 hours in the ER in the middle of the night, and then I got sick. So this year, Ellie gets sick and we are back at Children's. Go figure. I don't want to read to much into this, but.... Dam, what is going to happen next year?
This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
2 comments:
Aaaah! How does she feel? She usually weathers storms without acting very sick. I swear in her her serenade of Bushel and a Peck she looked less than 100 percent. I hope all is well soon - hang in there.
101.4F is ... (101.4-32)*5/9=39.8C
That is very high fever.
Get well soon.
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