Friday, June 05, 2009
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
11 comments:
Wah-freaking-HOO! Those are the best pictures I've seen in years. Possibly the best pictures since the very first moonwalk out the door. Home to Gus, with no balls!
Now that is some great news! Welcome home!
I loved the the Fancy Nancy Room!!
TGIF!!! That is so awesome I can't even explain it. And wow the house, too! Looks like makeovers all around. So glad things are coming together so wonderfully! Hope to see you tomorrow!
Awesome!
WHEW! Nice work!
Three cheers for home! And home is looking quite lovely, by the way.
We're getting ready to put our house on the market in a few weeks. Taking a deep breath...
I'm so glad you made such a big deal of it, as is befitting Super Girl. Welcome home Brogans!
I am so astonished by your family. We are awaiting reanostomosis for Juliana and my fear is that we will be in the hospital forever which is so stressful on everyone in the family. I hope we can travel in the fast lane too. Congrats to all of you!!! Ellie is such a trooper.
Catching up? I was the one behind. I didn't even know she was having her take-down. YIPPPEEE! I am so glad you are back home. I had tears in my eyes when I read your post about the talk. I too have thought so many times, "How the h*ll am I going to explain this to him?" I know when Ellie is old enough to truly understand, she will be proud of you guys and every decision you have made for her. I know you guys will always be at the top of my mentor list!!!
Sending love from Texas.... Chelle
love it. :)
It is so good to hear how well Ellie is healing and that you all are home again. Congratulations on the reanastomosis and on your return home!! Loved the video on fixing a broviac too!
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