In fact all is too well to keep up with this blog these days.
Ellie is a wild woman and is making nice progress on all of her goals since the last hiccup. She is most of the way back to her full feeding level (almost a month ago) and is showing us that things are back in the groove.
We will try to put up a longer update this week with some pictures of Ellie but we have been brave and traveled with her the last two weekends so we are playing a lot of catch up these days in between trips.
The way summer should be.
This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
1 comment:
I've been a little worried, so thanks for the update. Glad to hear she's doing so well. Enjoy summer!!
Post a Comment