This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
Things have progressed very well and Ellie is off of morphine and working towards being tylenol free in the next few days. The hope is to have her home by the end of the week when we can get back to the way things should be after our unplanned visit to the Longwood Bed and Breakfast.
1 comment:
Man, is it good to see that girl's goofy face. And it's nice to see that the days of "hey baby, nice tooth" are over.
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