Hello from Maine! ! We have been up here for over a week and we are having a great time. It has been really nice to have an nice extended visit to relax and spend time with family. Ellie has had a great time playing with her cousins and has been in the ocean twice so far.
The first time we discovered she was fearless and was ready to swim to the next island. The second time we introduced her to some of the crabs and snails that live in the water. "More Crabs! More Crabs!" has become one of her favorite phrases.
We have only been wading and she has been splashing, but we have not really been swimming. Gib and I are still chickens and are afraid of getting her cap and CVL dressing too wet. But we will be heading to another beach this weekend that will have clearer and warmer water, so we may try it again there.
We had a great 4th of July, but Ellie was not crazy about the fire works. We lasted about 1 minute before she said "all done mommy, all done!" So we headed home. We will try them again next year, or not. But all in all this has been really nice break.
This is also the first time we have spent more than a week away from home with Ellie. Our second week of medical supplies showed up today so we should be all set. During this trip we have had to do a dressing change and many cap changes away from the security of Ellie's room, which is our "clean room." But we are getting more and more comfortable with it, and Ellie is also more comfortable with our new routine that comes with a new location.
We are going home for a bit this week to unpack and repack and then we head out again to join my sister and her family on Martha's Vineyard for the weekend. After this we are home for a very long time, and we will have our first clinic visit in almost 2 months. We are really hoping they will be as impressed with Ellie's progress as we are.
The first time we discovered she was fearless and was ready to swim to the next island. The second time we introduced her to some of the crabs and snails that live in the water. "More Crabs! More Crabs!" has become one of her favorite phrases. 
We have only been wading and she has been splashing, but we have not really been swimming. Gib and I are still chickens and are afraid of getting her cap and CVL dressing too wet. But we will be heading to another beach this weekend that will have clearer and warmer water, so we may try it again there. 
We had a great 4th of July, but Ellie was not crazy about the fire works. We lasted about 1 minute before she said "all done mommy, all done!" So we headed home. We will try them again next year, or not. But all in all this has been really nice break.
This is also the first time we have spent more than a week away from home with Ellie. Our second week of medical supplies showed up today so we should be all set. During this trip we have had to do a dressing change and many cap changes away from the security of Ellie's room, which is our "clean room." But we are getting more and more comfortable with it, and Ellie is also more comfortable with our new routine that comes with a new location.
We are going home for a bit this week to unpack and repack and then we head out again to join my sister and her family on Martha's Vineyard for the weekend. After this we are home for a very long time, and we will have our first clinic visit in almost 2 months. We are really hoping they will be as impressed with Ellie's progress as we are.
2 comments:
It warms my heart to see her at the ocean. Those are such great photos. Hooray for vacation!
We sure missed you all in the Keys. Talked and thought of you often. Soon soon soon I hope Jenny and I get to see you; E is growing leaps and bounds.
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