Yup. No more splitters, no more caps each night....
we have gone from this with every other night's set up:
To this:
Bye bye Omegaven.
Day one of the no TPN experiment starts tonight. Results to follow.
This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
6 comments:
Two things happened today as I was driving from Augusta to Portland:
1. I saw a Fresenius truck driving North past Augusta. Never saw one before in my life. Just keep on driving, Mr. Fresenius.
2. This song came on my iPod. Appropriate for the day, I think:
http://www.youtube.com/watch?v=J8px9XnrlV8
Cut and paste the link and play it for your dancing girl. It's her theme song for the day.
Congrats! What a cool day.
This is an wonderful day!
Two and a half years- you 3 are amazing!
Love, Gramma
Dear Brogans,
You are my heroes. I still love Omegaven, but from afar. If I wasn't so happy today, I'd complain about a blog post with two - count 'em, two - photos, neither of which includes the star of the show, but I'm just too happy.
Of course, you could throw an aunt a bone any time now.
We're praying no TPN is needed EVER AGAIN!
Oh happy day! Ellie looks wonderful in all her pictures - a regular big girl now. So glad she's making such strong progress. All three of you continue to be an inspiration :)
Brenda (Nora's great-aunt)
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