Ellie had her periodic clinic visit today at Children’s. Abby took her while I went to
It was a meeting of the Omegaven families club today with old and new families there to see the docs. Abby met lots of families that were only names on the internet or email and even met a family that learned about Omegaven through this blog that we didn’t even know about. The community of families that has assembled around Boston is really something and growing by the day.
Please come to Boston for the Fish Oil....
Her weight is up. Up 320 grams from the last visit which is more than the 280 that the nutritionists and GI docs had hoped for. She still is in the 50th and 75th percentiles for weight and height respectively but ahead of where they want her to be. She now weighs 8.75 kilograms or 19.25 pounds. Quite a load that is giving Abby quite a set of arms.
As promised, we have reduced her TPN again. This time, in addition to reducing the overall volume, we are getting one whole night a week without TPN. She will still get fluids by IV on those nights since her colon isn’t fully attached to absorb fluids but no TPN.