We sat down and spoke with Dr. Jacsik, Eleanor's surgeon, last night around dinner time. I'm still not sure when these people sleep or see their own families, but I am quite happy that they spend so much time with my family.
Dr. Jacsik told us that since Ellie's GI study (where they put parium dye into her belly and follow it through her gut with radiographs) showed that her intestines are in fact open and that the dye did move through her gut, taking a leisurely 6 hours to do it. It should have only taken 2 hours to go through, but anything is good right now.
This has taken the pressure off for surgery at the 6 week mark and could give Ellie and us more time to see how her guts will recover and what kind of talents they will get on their own. If her GI were blocked, we would have been looking at surgery sooner than later but this is a relief to abby and I who are anxious about hurrying into anything.
In the meantime, we keep hanging out, injecting her with fish oil, and watching her be a baby. Not bad duty.
She was a bit uncomfortable last night since the site where her G-tube goes into her belly has gotten a bit red and inflamed. A bit of tylenol makes everything better, and she slept for most of the night, which was nice. They are watching it very carefully and she may get some antibiotics to be safe. One of the nurses was surprised tat she wasn't on them anyway.
I hate the bumper stickers that say 'So glad I voted for Bush', but I would like one that says 'So glad my baby is at Boston Children's.'
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I'm still not sure when these people sleep or see their own families,
Speaking with authority from the other side... whenever they get a chance!
Glad to hear it's going well and you aren't being rushed into anything. I'm very interested in the fish oil. What a wonderful hope for TPN therapy!
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