Hello it is Abby, it has been a solid month now and I figure it is about time I made a contribution to Ellie's blog. I have also gotten used to this new "normal" so much so that I feel that I can share with everyone. I don't know how Gib does it, from day one he has been stronger then I have in the fact that he was able to verbalize everything that we have been going through and then type it on to this blog, not caring who reads it. And now it is my turn. I think by reading this you can see that Gib is the more lyrical one of the two of us. And please feel free to correct my grammar, just give me a call here in the hospital one of the days that I have been here for over 24 hours and tell me what you think.
I feel like Gib's last entry was very dark, it is true these are things that we have been contemplating. But, we have also been thinking about how lucky Ellie is. We have met some very strong parents here at Children’s. Parents that have been here for 7 months and still have a few to go. Parents whose child has a short gut, heart and spinal issues. Ellie so far only has the short gut as her only issue. We have had everything else looked at many different ways and still they say she looks great. She is tough and both Gib and I have great guts and hopefully she inherited at least that from us.
We are just playing the waiting game now, our surgeon is leaving for two weeks on Friday to go to some conferences so we know that we have these next two weeks to offer Ellie food again and to sit and admire how cute she is. Offering food is always a bit stressful because you can't help but get excited that maybe this time she will keep it down. Then it can be really depressing the first time she pukes. My thoughts always get a bit dark when this happens but I try to remember that this is just a bump in a very long road.
She has a long way to go so if tomorrow’s food comes back up then we will just try again the next week. I just need to remember not to make puke so important.