Tuesday, May 02, 2006

The Waiting Game Continues

Ellie had a rough weekend with her milk feeding and was uncomfortable with her milk feeds. She vomited a few times and was close to vomiting a few times. This was an indication from the doctors that she may not be ready for food at this time and they decided yesterday to stop her feedings since they were not being theraputic for her. Her TPN feeding is working well so far and overall she has gained just over a pound since she was born. All without ever swallowing.

Although this is a small bump in the road from the ideal recovery from her surgery, the doctors told us that it is to be expected that Ellie will take 4-5 weeks to recover from her repair. We are just over three weeks post op right now and the doctors are not concerned about her progress.

So we wait. And watch. Two things that we have been well briefed on since the beginning of her care at Yale. Ellie is comfortable and awake and alert for a period of each day which is great fun for us since she is getting past the googly eyed phase and can almost focus on things like her fancy new mobile that is latched to her hospital crib.

Abby got a Playystation Portable for her birthday to kill time wile we sit and watch the sleeping baby and is busy learning how to shoot bad guys in fantasy land. Video games were a guilty pleasure for her before Ellie but now that she can do it guilt free, she is excited to blast away at the bad guys.

We will begin 'feeds' again on Wednesday. I hate that term. It makes me think about slopping the pigs.

3 comments:

Marge said...

I have tried before to blog but I am technically illiterate, even thoughyour sister Kate set me up....I forgot my password-----your mother remembered it last night when I was talking to your father. I have found all the information really interesting and the pictures of your daughter beutiful. She has been through the mill, it really is amazing. What size is she wearingnow...thought I'd get her a pretty dress, but wasn't sure of the size. Hang in there. Aunt Margn

Marge said...

I have tried before to blog but I am technically illiterate, even thoughyour sister Kate set me up....I forgot my password-----your mother remembered it last night when I was talking to your father. I have found all the information really interesting and the pictures of your daughter beutiful. She has been through the mill, it really is amazing. What size is she wearingnow...thought I'd get her a pretty dress, but wasn't sure of the size. Hang in there. Aunt Margn

Marge said...

I have tried before to blog but I am technically illiterate, even thoughyour sister Kate set me up....I forgot my password-----your mother remembered it last night when I was talking to your father. I have found all the information really interesting and the pictures of your daughter beutiful. She has been through the mill, it really is amazing. What size is she wearingnow...thought I'd get her a pretty dress, but wasn't sure of the size. Hang in there. Aunt Margn