We went to the garden this faternon for some sun and a nap. Ellie dressed for the occasion since she was feeling so good. 
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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2006
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June
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- New pictures and videos
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- More steps in the right direction
- Two steps in the right direction
- You do the short gut Hokey Pokey and you turn your...
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- Oh so pretty.....
- Before
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- The Short Gut Hokey Pokey
- Polar bears??
- All pink and snuggled in with Gramma
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- The New Pipes Get into Gear
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- Back in the NICU, You don't know how Lucky you are
- Surgery Update number one
- T-minus one night
- Waiting
- Abby's view from the Penthouse
- The Plan is Set
- Art!!
- A slow Saturday
- Doctor. Doctor. Doctor.
- A twinkle in her eye and a new Sox hat
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June
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2 comments:
Oh it's so nice to see you all out in the sun enjoying the nice weather. Ellie looks like she's doing well!
Two beautiful women! Wonderful pics. Apparently you've had a day without rain!
I had somehow missed the surgical shots. For a person who had no interest in seeing my own ACL repair video, I found these pictures, well, kind of artistic, almost. Then again, my mother (who was a nurse, after all) had a personal surgical picture of some sort framed and hung it in the bathroom! But that's probably more than everyone needed to know.
My mom, by the way, would have been sending her prayers (yup), but also would have been intrigued about the science of all this.
Anyway, talk with you all soon.
Hugs,
Barbara
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