Here is Ellie, all set for Christmas literally in her new stocking.New videos are up on YouTube:
http://www.youtube.com/watch?v=OQ4XgACmIZk
and
http://www.youtube.com/watch?v=Xj9xgMuyZHE
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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2006
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June
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- New pictures and videos
- Politics, Politics, Politics
- More steps in the right direction
- Two steps in the right direction
- You do the short gut Hokey Pokey and you turn your...
- I feel pretty...
- Oh so pretty.....
- Before
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- Baby Pictures
- The Short Gut Hokey Pokey
- Polar bears??
- All pink and snuggled in with Gramma
- Full speed ahead
- New Video
- To the Penthouse!!
- The New Pipes Get into Gear
- Pain Management
- Back in the NICU, You don't know how Lucky you are
- Surgery Update number one
- T-minus one night
- Waiting
- Abby's view from the Penthouse
- The Plan is Set
- Art!!
- A slow Saturday
- Doctor. Doctor. Doctor.
- A twinkle in her eye and a new Sox hat
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June
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3 comments:
I love the picture of Ellie in her stocking - surprisingly it's nice to see her scream every now and then too I bet! Wonder if this pictures is an omen of things to come when she has her first Santa Claus Encounter!!!
Totally cool!!!!
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