First off, the results of the bloodwork came back today and cleared Eleanor of a central IV infection, which is good. Line infections are Scary with a capital S and you don't wnat to know the statistics on what happens if she gets one that gets a foothold. So she is off the heavy antibiotics and went back onto food onThursday night. 1 ml every hour. drip. drip. drip.
That progressed well through Friday and we even gave her some food by bottle which she thought was just great.
'You mean sometimes when I suck on the binkie, food comes out?'
Cool.
Friday afternnon, things were going so well that we increased her food to 2 ml/hour and she did just fine on this until mid evening when Gassy Girl decided to spit up a little of the milk that had gone in through her G-tube. I thought that it was no big deal. I assumed that I had missed a burping and she showed me that she was still Gassy Girl, the child of Gassy Guy and Evervescent Abby. Bubble bubble, squawk, wheeeeze, wheeeeze. Then a quiet that makes me really nervous as she clears the liquid from her throat. Then a really loud set of wheezes.
IT is still scary even though I can predict the sound effects.
It is now 4 AM and. after a quick wardrobe change, Ellie is back to sleep and back to the land of no food. At 3:30 she decided to barf for distance with a little bit of milk and a whole lot of gas which made a dramatic entrance all over her fancy PJ's that she is finally long enough to wear.
I can still go upright from a deep sleep in two seconds.
So we are in a holding pattern until morning when the doctors, and more importantly Abby, arrive to assess the situation.
I am still not upset or discouraged. Amazingly I was having a dream about meeting a discouraged parent when Ellie woke me up tonight.
Doctor Freud. Paging Doctor Freud.......
Strange.
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