To this I offer exhibit A, Ellie's first day of preschool:
She is, quite simply, a glorious kid.
That goes a long way to offset the malfunctioning gut.
This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
8 comments:
And the first day of preschool looked like a glorious day for you all:)
Bravo! Been following closely and pleased the 1st day was a success for all. godspeed.
those faces boost morale for a lot of us. Thanks.
Oh. My. God. Did I need that today. Thank you so much. I can't tell which of you three enjoyed this more!
Wow, she has gotten so BIG! Glad to see a happy girl. I know how hard it can be to describe the good along with the bad that comes along with having an "extraordinary" kiddo. I think of all of you often and will continue to wish for your continued vigilance and for wonderful doctors and nurses for Ellie :)
I hope her first day went well. Her friends at EI talk about her often.
What a great start to my day!
Awesome, awesome, awesome. I can't believe how long her hair is, and what a big girl she is. I can, of course, believe how fantastic she is. Way to go.
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