some days are better than others. This was a good one a few days ago:
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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2006
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April
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- A Nice Day for a Walk
- A visit from aunt Beth, Ellie's Fairy Godmother
- Stance! Advance! Retreat!
- Another early morning of fun
- Visit from Gramma
- Ellie's Push Me-Pull You Gut
- The first baby steps
- Changing Beds
- Another in a string of very long days
- Friends with Computer Skills
- A Pit Stop along the Race Course
- Frogs!!
- Awake Time on Sunday
- Showing off for the family
- to Boston, To Boston.....
- GI tract 101
- Number 2
- another video clip
- Charity
- We had the uncomfortable conversation this afterno...
- We heard from the doctors are Boston Children's ye...
- Awake and alert
- We met with the occupational therpist today and ha...
- Mommy and Baby Time
- An experiment in video
- A new room and a new set of nurses
- A diagram of a (mostly) naked baby.
- An update from Dr. Superwoman
- #7 with a bullet!
- Visitors
- Look Ma, no tubes!!
- Home Sweet (temporary) Home
- Waiting Rooms
- Infant and Adult Enrichment Activities
- An Early Morning Visit
- And we keep on moving up
- The New Digs
- Moving On Up, Round Two
- A dip in our emotional rollercoaster
- A whole lot of information
- Moving on up
- Now cheering for the Boston Red Sox......
- Dad and his little girl
- Lots of support
- A new normal
- A good day for us today
- Welcome to Yankee Stadium
- A New baby girl
- A new tool for a wide range of folks
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April
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2 comments:
I was ready to go to bed, but I wanted to check "just one more time" for more pictures. This video is the best thing I've seen in a long, long time - I've just replayed it six times. I feel like I just met her!
See you Friday - I can't wait to see all three of you.
Beth
Me again... I just called Kate to tell her about this video (because I was so excited), and the first thing we both said was how wonderful it is to see Ellie recognize her mom's voice and smile at her!
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