some days are better than others. This was a good one a few days ago:
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Wednesday, April 19, 2006
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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I was ready to go to bed, but I wanted to check "just one more time" for more pictures. This video is the best thing I've seen in a long, long time - I've just replayed it six times. I feel like I just met her!
See you Friday - I can't wait to see all three of you.
Beth
Me again... I just called Kate to tell her about this video (because I was so excited), and the first thing we both said was how wonderful it is to see Ellie recognize her mom's voice and smile at her!
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