This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
Ellie is a lot more awake and alert these days and is starting to explore her face with her hands (good signs for kids with gut issues, the therapist tells us) but unfortunately her little baby fingernails are very sharp and needed filing. We set her up with the crib mirror while Abby filed them and she was great for 20 minutes, looking at the mirror. I couldn't resist a photo. 
1 comment:
Great pictures! You all look a hundred times better than you did a week ago.
Keep those pictures coming. Hooray for Ellie!
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