Eleanor was operated on at the ripe old age of 18 hours on Sunday, April 9th.
Very briefly, what the surgeons found is that she was born without a significant portion of her small intestine and had essentially an open tube coming from the top of her digestive tract and an open tube coming from the lower portion of her bowel. Only about 15% of her small intestine is in tact.
The doctors essentially replumbed her bowel and connected the loose ends to make a continuous tube from mouth onward. What this means for long term recovery is uncertain but the best the doctors can tell us is that she will be here at Yale for at least a month and maybe longer. She may need care for her whole life and may never function 'normally'. My mom asked me for an example of who functions normally and I laughed through my tears that night.
She recovered in the Baby Intensive Care Unit the following day and we were allowed to visit her as she recovered, even touching her and taking pictures:
Seeing a baby with tubes and wires was a shock for me but through all of the wires it was till my daughter (that is till taking time to say smoothly, by the way).
She would squirm and wiggle for us when we would tickle her toes and hands and even think about opening her eyes every now and then, but was still very sleepy from anaesthesia and pain meds, but the surgery was a success.