One of the amazing things that has happened in the last few days has been the number of people who either know or are related to or have used pediatric gastroenterologists or pediatric surgeons. For example, Abby's stepmother told us that he uncle just happens to be the Micheal Jordan of pediatric surgery and literally wrote the book on the subject. And that is just one of the connections that has been made for us.
Right now we are still very much overwhelmed by the issue and have successfully managed to avoid Googlemania which could consume hours of our time reading information that is at best questionable and could be distracting from the information that our great surgeon is giving us. Even worse, it could give us outdated information about Eleanor's condition (disease/defect/syndrome?) which is overly grim when the info comes from just a few years ago when her situation would have had a much different outlook.
We will most likely talk to other doctors in the near future to get second and third opinions but for now we are letting things stabilize and letting Ellie spend as much time with her Mom and me as possible.
Thursday, April 13, 2006
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