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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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2006
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September
(22)
- What a week
- Week of September 25-29
- Flawless, absolutely flawless
- But mom, I look silly
- Sage advice
- 6.02 kg
- Derek Lee
- An end of cisapride
- A plan for the weekend move
- Quack Quack
- New Pictures
- Professional Parents
- QT
- parents
- New Drugs, new House
- Sunday Update
- Got a roof for our heads
- Let's hear it for Craigslist!!
- Another slow day
- Our first born
- Happy Birthday, Hospital-style
- Cisapride
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September
(22)
2 comments:
She looks truly mortified to be photographed in such a state. Keep the pictures coming!
I love the duck picture! Every kid should have a picture fresh out of the bath in a duck robe - to be save for when those embarassing pictures are TRULY needed later on!
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