

This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
5 comments:
Abby, Gib, she looks go big, happy and beautiful - what a great little dress!
That's a wonderful picture of you two. Ellie looks so grown-up! See you in the morning.
OH .. MY .. GOSH SHE IS SOOOOO CUTE!!! And Abby! You look amazing!!! I miss you guys!
Jack and I are just back from Boston, where we had lunch in the garden with Ellie and Abby (Gib was here in Maine for a meeting).
Ellie is laughing, smiling and guzzling her bottles. I got lots of quality Ellie time today. If you are near Boston, or even if you are not near, get to Boston if for nothing more than to see her smile- and to marvel at her growth chart. Love that fish oil.
I agree with Martha - I made it to Boston this week and it was so great to see Abby and Ellie - sorry I missed you Gibber!!! Great smiles - worth the trip!!!
Love,
Judy
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