Monday, July 03, 2006

Did I ever tell you how lucky you are?

There is a Dr. Suess kind of book with this title and I tried to read it to Ellie the other day and just couldn't because every time I read about the person's unfortunate events, I found myself thinking about Ellie's situation and how unlucky we are (but not like Hurley on Lost, fortunately).

I have begun to take Ellie's progress back from her yellow months for granted and don't think about it as such a big deal. I guess that I never saw her fail like so many other parents of short gut babies have and never had the despair of not having anything to do to save her liver.

We really are very very lucky to be here and have Ellie doing so well.

Today, the Boston Globe started to expand the luck and published a neat article on the snake, er, fish oil that Ellie is on. It explains the good results that they have seen so far and the need for large trials to get more kids on the juice.

Hopefully this this will help some other babies that aren't as lucky as Ellie is.

Her liver numbers keep dropping and her Bilirubins are now "normal", .7 and 1.2.


kate said...

.7! It's just a matter of time before the gills appear and she can start seeing through walls and stuff. The Amazing Gut Girl!

Here's my favorite part of the omegaven article: "You asked if it's the greatest thing since sliced bread, and my answer is yes." Amen, brother. Omegaven can be Ellie's X-Men name when she's old enough to start really kicking ass.

Abby Brogan said...

Hey it is a Dr Suess book! Amanda gave it to us!

Amanda said...

:-D !!!!!

I sat in the store for practically an hour debating whether to get that one or not, but in the end I thought I made a good decision. She is a very lucky girl!

I may be silent most of the time, but I read this everyday and you are all in my thoughts constantly. Every time I look at Ellie's announcement pic a huge smile crosses my face and I can't help but's too cute.