We met with Ellie's doctors and nurses, etc today and as of this morning, the target to get Ellie out of Children's is the week of August 1.
The transition begins immediately and we are going to get educated in all sorts of Ellie care things, but soon we will be doing them from home.
Yes, HOME!!!!
This is, of course, barring any set backs. (knock on wood now).
This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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- What do Deer Ticks Carry?
- Man Down
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- Do a little dance today
- A 12 hour vacation
- A night in the hospital volume 1
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- Did I ever tell you how lucky you are?
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8 comments:
what exciting news!! Go Ellie! Hows Gib? Can't wait to visit. Take care.
The DelMonaco Family
Wow! We're so excited for you!
Chuck, Alicia & Leighjee
That's great news! So happy for you all.
The Flaherty Family
August 1st! Hooray! That girl's going to be sunning herself in her back yard before you know it!
So glad to hear it!! I might have to scalp thoe Red Sox tickets for the 16th! Keep us posted!
Awesome. Incredible. Terrific. That news is the best way I can imagine to start my day!!
xoxo
Barbara
Oh Abby & Gib & Ellie Congratulations on the good news - praying hard and keeping my fingers crossed all goes well these next two weeks so the Brogan Family can FINALLY go home and enjoy their daughter in the comforts of their humble abode!
Abby - How's Gib doing??
YAY!!! That is such incredible news. No matter when it happens, at least it's in the ballpark now. She'll finally get to enjoy that wicked cute nursery we painted! Abby, I wish I could be there to help you out while Gib's ill, but you're in my thoughts all day and I'm sending all my positive energy your way!
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