
Today made those concerns less.
These are photos of Ellie immediately pre bottle when she was ready to play.
And a video is at:http://www.youtube.com/watch?v=D_L_IXKIptc


This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
4 comments:
Hey Brogans!
Ellie looks so happy and alert. I'm so happy to read things are going well! Enjoy the Fourth of July with your bundle!
If this website has a way to do a poll, maybe it is about time to vote on the best pic posted so far. My favorite is the one when Ellie is looking in the mirror with the back-and-forth on who's the cutest baby.
It reminded me of that scene in Beaches: "Enough about me. Let's talk about you. What do you think about me?"
Mike
Great News about the feeding - I was never lucky enough to feed Naomi and I don't think it was ever even mentioned as a future possibility because Naomi didn't handle milk very well unless it was on a trickle feed by pump (bottle was too much in one go) so Ellie must be doing really well.
I also can't believe how white Ellie's eye 'whites' are - I have NEVER met a SBS baby on TPN for 3 months with such white eyes - HURRAH FOR THE FISH LIPID!!
Tun
Tunny, before Ellie was born, I had never known a SBS baby so this is a "first" for us. I always look forward to your entry because you have a "been there, done that" perspective. You always make me feel terrific about our grandaughterl,Ellie.Thank you You are right, the whites of her eyes are white! Love that fish oil.
Post a Comment