This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
Playing on the playground
Flight for life helicopter flying over the play ground
All the GI docs that can do the balloon procedure are either on vacation or out of town. So wait we must. We are having fun and Ellie is happy. But we a getting a bit sick of waiting.
3 comments:
Can you at least get day passes to get out of the hospital and roam around Boston, while waiting? Even that big hospital starts to feel small after a few days with an active lil person.
Sending good vibes for a good procedure tomorrow!
Sure do love those medical helicopters!!!! Ellie looks like she's at any playground having fun - hope you're all home soon!
Hi Ellie,
It is good to see your cheerful face and your pretty green crocks. Please keep smiling. We wish you were in Vermont with us, but we hope to see you again soon. Please keep the doctors and your splendid parents happy.
With much love,
Hope and Henry
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