We have known that after Ellie's reconnection surgery in May we would be looking at a completely different girl and everything we knew about her bowels would go out the window.
3 Hours after the contrast was added to Ellie's belly through her G-tube, the contrast still had not moved from her small bowel to the colon. In the past we have seen this time be as short as 30 minutes.
(This statement really best yelled and while shaking your fist in the air.)
Yes, this is the problem we have had for... um,..for.ever?
We head in tomorrow for a lower GI contrast study through a contrast enema (oooh!). If we still see this problem then we will probably be admitted to wait for a surgical spot to fix the narrowing. As we finished talking this afternoon Dr. Jennings was toying with idea of setting us up with enough IV hydration fluids to compensate for the lack of any food or liquid going through her gut and letting us go home for the weekend and then come back on Monday for admission and sugery. We can hydrate her here as well as in the hospital so if a surgical apot isn't open until Monday that sounds like a great option. Ellie does best at home and biding our time in the hospital with a happy girl is tough duty.
All this does mean that Ellie is off of all solid foods. She can have small amounts of clears but not much as most everything is backing up. Not really that easy but I think she has been feeling pretty yucky over the past few days and this will make her feel better. Looking back at the summer, this would explain almost all the problems we have so far.
After Dr. Jennings left Gib and I were pretty sad. The idea of another surgery, and hospital stay is not something we look forward to. But on the flip side, it is an answer to a question that has been beating us up all summer. Now we know what was happening and hopefully we know how to fix it. Hopefully.