Friday at 1:30.
We check in Thursday around lunch for a night of prep to get all of that nasty barium chalk out of her poor bowel and then away we go.
Wednesday, August 26, 2009
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This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
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2009
(84)
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August
(22)
- She's UP!!
- Precautionary Management
- Good Night
- Back to the floor
- All Done
- 4:45 Update
- A Versed Cocktail
- Surgery Friday
- Where You Know the Radiology Tech by Name
- Home Rehab
- Not Tolerating
- Answers but no solution
- "I'm sorry, Daddy"
- Change of date.
- More waiting.
- 3rd time is the charm
- Good Day
- Change of plans...Again.
- Home for the Weekend
- lets try this again
- Bad and Good
- No news..Is not always good news.
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August
(22)
3 comments:
glad you got an answer, but SO sorry for what it entails!!!!! Caed currently has a "functioning stricture", and I absolutely HATE it! Our next UGI is coming up in Oct. We'll be checking in with Ellie and praying for a quick fix and recovery.
I'm so thankful for your doctor and we'll be praying for her surgery. You guys are amazing.
ugh i'm so sorry this means another surgery - but glad you found an answer. keep us posted.
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