Abby and Ellie are spending lots of time together and starting to spend time doing 'kangaroo time' with Ellie on Abby's bare belly. 
Subscribe to:
Post Comments (Atom)
This is the story of Eleanor Brogan who was born in April 2006. She was born missing 90% of her small bowel and 20% of her large bowel. This made her "Short Gut" or "short bowel", hence the name of the blog. Currently she is being treated by Children's Hospital Boston. She was the 23rd child to go on the new lipid for TPN, called Omegaven. Which has saved her liver, kept her off the transplant list and we believe saved her life.
About Us
Email Us
Search This Blog
Some topics covered in this blog
Short Gut/Bowel Information
Our Doctors and Hospital
Reading Material
Other short gut blogs
Visitor Map
Blog Archive
-
▼
2006
(224)
-
▼
April
(49)
- A Nice Day for a Walk
- A visit from aunt Beth, Ellie's Fairy Godmother
- Stance! Advance! Retreat!
- Another early morning of fun
- Visit from Gramma
- Ellie's Push Me-Pull You Gut
- The first baby steps
- Changing Beds
- Another in a string of very long days
- Friends with Computer Skills
- A Pit Stop along the Race Course
- Frogs!!
- Awake Time on Sunday
- Showing off for the family
- to Boston, To Boston.....
- GI tract 101
- Number 2
- another video clip
- Charity
- We had the uncomfortable conversation this afterno...
- We heard from the doctors are Boston Children's ye...
- Awake and alert
- We met with the occupational therpist today and ha...
- Mommy and Baby Time
- An experiment in video
- A new room and a new set of nurses
- A diagram of a (mostly) naked baby.
- An update from Dr. Superwoman
- #7 with a bullet!
- Visitors
- Look Ma, no tubes!!
- Home Sweet (temporary) Home
- Waiting Rooms
- Infant and Adult Enrichment Activities
- An Early Morning Visit
- And we keep on moving up
- The New Digs
- Moving On Up, Round Two
- A dip in our emotional rollercoaster
- A whole lot of information
- Moving on up
- Now cheering for the Boston Red Sox......
- Dad and his little girl
- Lots of support
- A new normal
- A good day for us today
- Welcome to Yankee Stadium
- A New baby girl
- A new tool for a wide range of folks
-
▼
April
(49)
7 comments:
What a great photograph, Ellie looks so sweeet. It's nice to see Abby too. Emily
Great picture! I love how Ellie's holding on and Abby, your smile says it all!
oh my gosh this picture got me all choked up. What a beautiful pair of ladies. I'm so happy for you all.
Becky
What a beautiful picture...she certainly is beautiful. Heard about your big adventure to Boston, hopethe trip is smoothas silk. You are my first blog try; . I'm being draged kicking and screeming into the whateverr age. Hang in there you two, no, make that three
Aunt Marge
You two are anazing and your daughter is beautiful. I think she is blessed to have you as her parents. The pictures are wonderful, I can see her growing from week to week. This is my third or fourth try at blogging....not too good at this, know I'm thinking and prying for you every day. Aunt Marge
She's pink and beautiful. I watched the movie and saw both arms winding up. I can't decide if she's Schilling of Delcarmen.
Marge can't get her password straight, so she says to tell you Ellie is pink and beautiful. We're not an original pair.
Gramma came home from the hospital last night and I could hear the joy in her vioce. "II held for two hours. Her billiruben is only 2.3. She's all pink and smiling at me." Good signs.
The last picture of Abby was wonderful, she looks so animated and happy....it's really amazing. Sounds as if your plans are moving along pretty well, and that's a plus. I hope this blog makes it, I'm not very good at this. I am thinking of you all. Aunt Marge
Post a Comment